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You may use this Guestbook to show your support for the family
and send them greetings by adding an entry below.

tbrors
Tue, 06/29/2010 - 10:48am
 Hi Emily,  I would love to connect with you.  My 4 month old daughter Genevieve had gastroschisis and NEC and is now short gut.  We transferred from Jacksonville FL to the Children's Hospital Boston a few weeks ago.  They are doing amazing things here that is allowing the childs own bowel to adapt.  We were told our only hope was for Gen to have a bowel and liver transplant but the surgeon here feels that there are other options for her that would be much better.   Please email me I would love to hear more about how your beautiful son has grown and learned to do things.  Gen is not rolling over yet but she is getting better at head control.   Hopefully I will talk to you soon.  Tiffany tiffany.brors@gmail.com
The Wright Family
Sat, 05/22/2010 - 11:40pm
We are an adoptive family in Seattle. If you need anything (really, anything- dinner, a book to read, a hug, a few hours away from the hospital) while you are here, please think of me as a resource for you. Megan
Comment by Emily
Wow! Thank you so much! Since we know very few people in Seattle, we might just take you up on that.
Birth Grandma Cheryl
Fri, 05/07/2010 - 9:47pm
All of our families and friends are praying for you and Patrick, may the lord be with you and your family as well. Best wishes, looking forward to seeing all the updates. Thank you from the bottom of my heart, Brian and Emily you are a god send.
Kathy Stevens
Fri, 02/12/2010 - 12:00pm
Our prayers will always be with Patrick and his parents. What a sweet spirit!!!
Chaplain Bonnie Krauskoff
Fri, 02/12/2010 - 10:24am
What a beautiful boy you are raising. He was always beautiful though and I know having been there the earliest days of his life. God bless you all. Chaplain Bonnie
Dawn Harrison (COTA for Jessica Lynn C coordinator)
Thu, 01/14/2010 - 10:49am
You have such a cute little man! I wish only the best for your journey.
Heather (mother of Colten Blake)
Sun, 01/10/2010 - 10:06pm
My youngest of three boys (2 years old) is also a member of COTA. I read Patrick's story on the website, and wanted to share some thoughts with you. My son has a rare disease that has damaged his liver. He needs a liver and bone marrow transplant, and the doctors are suggesting that my husband be the donor. We live in Kansas City and have bi-weekly clinic visits. Colten has endured countless lab draws, a port-catheter placement, liver biopsy and transfustions. We have traveled to St. Louis for transplant evals and now we are traveling to Chicago at the end of January. I just wanted to share from one mother to another, that there are people out there experiencing what you are going through. Everything that our family has experienced in the last 8 months has been unimaginable to someone that has not had a sick child. I hope and pray that Patrick gets his transplant. I would like to learn more about what the donation process is. If there is anything our family can do, please let us know. Our prayers are with you! My son's site it cotaforcoltenb.com if you would like to read about him. He has been on our local (KC) news and there is a link to view that. Please let me know if there is anything I can do. Heather Blake
Thinking of you
Sun, 01/10/2010 - 3:43pm
Have you heard about the miracle of Omegaven? My grandaughter was also TPN dependent and her liver was failing, Omegaven saved her life! The info is all on her site - faiths-place-08.blogspot.com if you are interested. Praying for your family!
Comment by Emily
Your blog is amazing! We do have access to Omegaven, but are having luck with a low-lipid strategy here in Utah. Last bili 1.3
Doug and Barb Fredin
Sat, 12/12/2009 - 3:44pm
Sister Hoopes, You may not remember us, but we certainly remember you and your service in the Frankfort Branch. We were so sorry to hear of Patrick's illness. (I'm "friends" with Sister Withers on facebook, and that's how I learned of your situation. Please know that all 3 of you will be in our prayers, and that a transplant will be available soon. I hope that our small donation can be at least a little help in all your expenses. Warmenst regards, Barb Fredin
Colleen McQueen
Thu, 12/03/2009 - 6:43pm
Hi, I am the mom of Devin M... cotafordevinm.com He is 6 yrs old and recieved his isolated bowel (small and large) last Feb 23. We are 9 months post transplant and have had our share of ups and downs because of the FLU!!! Devin's transplant was a huge success, it improved his quality of life tremendously. You can read his journey on his site. But he was TPN dependent and unable to take anything by mouth.. Now he eats by mouth. He does require GT feeds for hydration and supplemental calories. He stools every other day!! It's been amazing. We very patiently waited for the perfect situation and the perfect match.. 5 calls later!!! Thinking of you!! Colleen (mom of cotafordevinm.com)